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英文标题: | “To Overcome (Guo Kan)”: Suffering Experiences of End-stage Renal Disease Patients |
摘要: | 慢性病患者的疾痛体验是社会科学关注的重要研究议题。本文基于对11名终末期肾病患者的多阶段深度访谈,致力于探索他们的疾痛体验。研究发现,受访者以“过坎”为其疾痛体验的隐喻表达,这一表达包含了适应症状、重塑自我和调整关系三个层面的叙事,而此一体验的展开是结构、文化和主体能动性互动的结果。“过坎”折射出适应慢性疾痛的复杂性以及在此过程之中患者的体验与策略之异变。 |
英文摘要: | This paper explores the suffering experiences of eleven Chinese patients with end-stage renal disease (ESRD). The longitudinal qualitative study identifies “to overcome” (guo kan) as the core narrative and metaphor about the suffering experiences of ESRD patients. The narrative of “to overcome” includes reconstructing of the self to live with bodily deficiencies, adjusting the change of one’s social roles, and rebuilding family and social networks. This process is the result of interaction among culture, structure, and personal agency. We propose theoretical and practical implications for developing social work services for patients with chronic diseases in China. |
作者: | 何雪松、侯慧 |
作者单位: | 华东理工大学(何雪松);杭州师范大学(侯慧) |
期刊: | 社会学研究 |
年.期:页码 | 2020.5: |
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关键词: | 疾痛体验;终末期肾病患者;过坎 |
英文关键词: | |
项目基金: | 本文为2016年国家社会科学基金重大项目“社会治理背景下我国社会工作行动本土化理论框架与实践体系研究”(16ZDA084)的阶段性成果。 |
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